I do not believe the behavior is related to the lissencephaly, at least not directly. It may be a random behavior that he has initiated which is somehow self-reinforcing. I would suggest observing for a while. It may disappear spontaneously. If it persists or worsens or other unusual behaviors emerge, I would contact his PCP first. If there are concerns about seizure activity (which I don't think this is) or other causes, perhaps further evaluation would be warranted. This behavior does not sound concerning to me at the moment.
Tuesday, October 16, 2007
Maybe its nothing -- follow-up
I sent a message regarding my concerns about Daniel's head-shaking to the pediatrician at the Kluge children's rehabilitation center. Below is his encouraging reply:
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