Making connections

Lara and I received an email from a Massachusetts woman who came across our blog. (Apparently, if you Google "lissencephaly blog," ours comes up toward the top of the results.)

She wanted to let us know about her 18-month-old daughter, Katie. Like Daniel, Katie has been diagnosed with a mild form of lissencephaly. And like Daniel, Katie has been making developmental achievements.

Katie's mom had many kind words of encouragement for us and identified readily with the inherent isolation that we sometimes feel in dealing with this rare condition. Her message was a pleasant reminder that there are other parents who are coping with similar challenges.

But perhaps the happiest part of this exchange was the sharing of some recent photos of Katie, which show her crawling, grabbing, climbing and engaging her older sister. Daniel hasn't reached this level yet, but Katie's progress certainly fuels our optimism.



(Used with permission of Katie's parents)