We found out! Well, we have some very basic knowledge at last of what may very well be the cause of Daniel's everything. His developmental delay, his cerebral vermis hypoplasia, his hypotonia and more issues. Get this: it is one gene and it is a deletion from the gene. The gene is BCL11A.
The research assistant explained it like this: If the gene were the word Supercalifragilisticexpialidocious, then Daniel would be missing the "cali" part. Think about that! That "cali" part is what has done this?! Can your mind even go there because mine cannot! It is insane! So far though, that is what we have.
What does it mean for Daniel? A whole lot of nothing at this point. It means we keep on doing the day to day stuff. We keep on raising him like there is no limit. We keep bringing him with us to unique places and we keep loving him like we love him--with all of our heart. So Supercalifragilisticexpialidocious to you all!
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